Very sorry for not posting in quite a while but to be honest things have been going great with my back and I’m in a lot less pain now I’ve recovered from my operation.
So I thought it would be a good idea to show you a video of what happens when I go to have my MAGEC rods lengthened. I have to go to have this done every three months as well as x-rays and body surface scanning to track the changes in my curves and monitor my growth.
The lengthening of the rods only takes a couple of minutes and doesn’t hurt, I sometimes think it tickles a bit but that is all! Each time I go the rods are made longer by 3mm, which over a couple of years means they can grow about 4cm. The rods keep the curve from becoming any worse but allow my back to grow as I do and because this can be done from the outside, I don’t have to have an operation each time. How great is that?
Below is a video of a recent lengthening and in it you can see how simple it is as I lie down for my doctor, Mr Breakwell, to make my rods longer with the special machine.
Thanks for watching,
3 thoughts on “Taller Not Smaller!”
It is very kind of you to share all these information. We are very worried parents who were just advised that our young son Patrick (about your age) should undergo a similar surgery. So it was good to read your posts. Even though every Pathology and therapy is unique your blog has helped us better understand how you as a person (Not parent! / Not doctor!) coped with the therapy and live with those implants. At this stage it is hard for us to project what kind of activities on a daily routine are still causing you problems (Pick up a school bag? Sit for too long? Car travel etc…). May be you can post on this? You’re a brave girl! Keep it up (-;
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Thank you very much. I really liked your suggestions for more blog post and I think it’s a good idea to share how I go about my normal life with these rods. Keep your eye out for more on this soon! Emilia
Thank you for your message, I really liked your question about living with my MAGEC rods and I have finally got round to writing a blog about just that. I hope it might help you understand some of ways it affects me. Thanks for getting in touch, Emilia